Dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide.
ISONG Position Statement: Genetic Biobanking for Research
The ISONG Position Statement on Biobanking is a clear and thoughtful statement on an important issue. Thanks to Esma Paljevic, Karen Zanni (previous co-chairs) and all members of the Ethical Issues and Public Policy Committee who contributed to this excellent work.
NIH Policies and Potential Resources
The link below summarizes NIH policies and potential resources but the link is not comprehensive. NIH Investigators are required to have a data sharing plan in place, and they have a variety of choices.
Research Portfolio Online Reporting Tools (RePORTER)