International Society
of Nurses in Genetics

Dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide.
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Genetics/Genomics Nursing: Scope and Standards of Practice, 2nd Edition

Congratulations to Alice Kerber and Nancy Ledbetter, along with many additional ISONG members who contributed chapters, edited, and proofread the 2nd edition of the Scope and Standards. We thank them all for their contributions and hard work on behalf of the entire Genetics Nursing profession!

Completely updated by genetics/genomics nurses for genetics/genomics nurses. The first best resource for the RN or APRN genetics/genomics nurse at any level and in any setting. Essential for all involved in this nursing practice specialty now and throughout this decade.

Genetics/genomics nursing practice and care focuses on the actual and potential impact of genetic and genomic influences on health. These nurses advise and educate clients and families on such influences that might impact their health, identify and manage physiologic responses. The goals of their nursing interventions: to optimize health, reduce health risks, treat disease, and promote wellness. Their research and evidence-based practice also includes interprofessional collegiality and collaboration with other genetics/genomics professionals and other healthcare professionals to provide quality patient care.

A workgroup of genetics/genomics nurse experts, convened by ISONG and ANA, completely updated and expanded the previous edition. With input from nurses nationwide, their revision addressed and incorporated ongoing and anticipated changes in genetics/genomics nursing as well as in nursing and health care in general.

The revised scope of genetics/genomics nursing practice—the who, what, where, when, why, and how of practice—sets the context for understanding and using the standards: the underlying assumptions, characteristics, environments and settings, education and training requirements, key issues and trends, and ethical and conceptual bases of genetics/genomics nursing.

The updated 16 standards frame any evaluation of the outcomes and goals of, and measure the accountabilities for, general graduate-level nurses and advanced practice genetics/genomics nurses. 

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