International Society
of Nurses in Genetics

Dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide.
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Position Statements

A Position Statement reflects the vision, mission, and goals of ISONG on issues of global concern regarding genetics/genomics. The purpose of a position statement is to provide a brief background on the issue, identify concerns, and state ISONG’s position. The statement will offer direction for nursing research, education and/or practice. 

The Ethics and Public Policy Committee is proud to announce a new Policy and Procedure for Writing Position Statements and Issue Papers.  Please log in to view:

Policy and Procedure for Writing Position Statements 

These ISONG Position Statements have been approved by the ISONG Board of Directors as clear and thoughtful statements on important genomic healthcare issues. Thanks to all ISONG members who contributed to this excellent work.

Newborn Screening: The Role of the Nurse (Updated November 2020)

Informed Decision-making and Consent Related to Genetic Testing (Clinical and Research): the Role of Nursing (Updated December 2018)

Direct-to-Consumer Genetic/Genomic Testing (DTC-GT) (October 2017)

Genetic Biobanking for Research (February 2013)

Access to Genomic Healthcare: The Role of the Nurse  (Updated April 2010)

Privacy and Confidentiality of Genetic Information: The Role of the Nurse  (Updated May 2018)

Genetic Counseling for Vulnerable Populations: The Role of the Nurse  (January 2010)

Provision of Quality Genetic Services and Care: Building a Multidisciplinary, Collaborative Approach among Genetic Nurses and Genetic Counselors  (November 2006) 


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