International Society
of Nurses in Genetics

Dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide.
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Position Statements

The Ethics and Public Policy Committee is proud to announce a new Policy and Procedure for Writing Position Statements and Issue Papers
ISONG Members please log in to see the statement:

Policy and Procedure for Writing Position Statements 

We are grateful for the scholarly work of our members, Lisa Aiello-Laws, Jennifer Sanner Beauchamp, Simbarashe Kamba and Laura Beamer who worked on this newly revised Position statement:

Informed Decision-making and Consent Related to Genetic Testing (Clinical and Research): the Role of Nursing
(PDF Updated December 2018)

These ISONG Position Statements have been approved by the ISONG Board of Directors as clear and thoughtful statements on important genomic healthcare issues. Thanks to all ISONG members who contributed to this excellent work.

Direct-to-Consumer Genetic/Genomic Testing (DTC-GT) (PDF)

Genetic Biobanking for Research (PDF)

Newborn Screening: The Role of the Nurse (PDF)

Access to Genomic Healthcare: The Role of the Nurse  (PDF)

Privacy and Confidentiality of Genetic Information: The Role of the Nurse  (PDF Updated May 2018)

Genetic Counseling for Vulnerable Populations: The Role of the Nurse  (PDF)

Provision of Quality Genetic Services and Care: Building a Multidisciplinary, Collaborative Approach among Genetic Nurses and Genetic Counselors  (PDF) 

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