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Dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide.
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The International Society of Nurses in Genetics, Inc. was incorporated in 1988 in the State of Maryland by a small group of genetic nurses.  Today, ISONG is proud of their international membership of 350+ which continues to grow each and every year.

ISONG leadership is comprised of a Board of Directors, many Committees, and others who volunteer their time, talent and energy in order to achieve the goals of the ISONG membership.

ISONG hosts an annual 3-day World Congress every year for nurses in genomics worldwide, traditionally in the fall.  During this exceptional program attendees will participate in presentations that support them in their quest to be leaders and innovators in the growing filed of genetic and genomic nursing science.  

what we do

ISONG is an inclusive professional group serving the nursing profession and the public. Internationally, nurses are engaged in genetic and genomic healthcare at all levels of policy, education, research, and clinical practice.  We welcome new perspectives and relish the opportunity to have new members join us in shaping the future.

The Goals of ISONG

Global community

Build and sustain a vibrant international community for the development of nurses in genetics and genomics in relation to education, research and professional practice that enhances social capital by:

      • fostering effective communication and networking with nursing organizations and other genetics specialty groups
      • promoting interprofessional collaboration in the care of people, families, and communities at risk for genetic conditions
      • providing a forum for education and support for nurses providing genetic- and genomics-based healthcare.


Promote the integration of genetics and genomics across nursing education, research and care at all levels of professional practice, through:

      • promoting engagement of nurses with genetics and genomics
      • sharing expertise and best practice in education, research and care delivery
      • offering practical support for continuing professional development.


Demonstrate and promote leadership in the development and implementation of standards of healthcare practice in genetics and genomics for the benefit of patients and families, through:

      • leading and influencing public policies;
      • articulating standards of practice in nursing professional education and clinical care;
      • generating and disseminating evidence for high quality nursing practice;
      • maintaining an outward-facing approach to collaborative working with other relevant public and professional groups.

What is a Genetics Nurse?

A genetics nurse is a licensed professional nurse with special education and training in genetics. Genetics nurses help people at risk for or affected by diseases with a genetic component achieve and maintain health. Many common diseases are now known to have a genetic component, including cancer, heart disease, diabetes, and Alzheimer's.

Genetics nurses perform risk assessment, analyze the genetic contribution to disease risk, and discuss the impact of risk on health care management for individuals and families. They also provide genetics education, provide nursing care to patients and families and conduct research in genetics.


Nurses In Genetics Work With Patients And Their Families In Many Settings

  • Specialty clinics where gene-based diagnoses and therapies are offered
  • Prenatal and reproductive technology centers
  • Cancer centers
  • Primary health care settings
  • Pediatric clinics
  • Industrial health
  • School health
  • Research centers
  • Biotech and insurance industries

Who Could Benefit From Genetics Nursing?

  • Individuals and families with known hereditary conditions or diseases thought to have a hereditary component
    Examples: Alzheimer's disease, cancer, cystic fibrosis, diabetes, Down syndrome, hemophilia, Huntington’s disease, Parkinson’s disease, Sickle Cell disease
  • Anyone who is considering genetic testing
  • Individuals and couples who are concerned with issues related to pregnancy, such as birth defects, transmission of
    genetic conditions, or effect of pregnancy on existing genetic risk
  • Couples who have had multiple miscarriages
  • Couples who are related, such as first cousins
  • Healthcare providers who seek genetics consultations for their patients

What Can Genetics Nurses Do For You?

  • Obtain a detailed family history and construct a pedigree (family history diagram)
  • Assess and analyze hereditary and nonhereditary disease risk factors
  • Identify potential genetic conditions or genetic predisposition to disease
  • Provide genetic information and psychosocial support to individuals and families
  • Provide nursing care for patients and families at risk for or affected by diseases with a genetic component
  • Provide genetic counseling (Advanced Practice Nurses)
  • Facilitate genetic testing and interpret genetic test results and laboratory reports (Advanced Practice Nurses) 

Genetics Counseling

National Society of Genetic Counselors -- the leading voice, authority, and advocate for the genetic counseling profession. Discover the genetic counseling profession and its guiding principles. 

Learn More

Genetics & Nursing

National Genetics Education and Development Center -- a site for learners and educators about what is important to know and the activities to be undertaken in clinical practice. Includes fact sheets, videos, PowerPoint presentations, telling stories and case scenarios. 

Learn More

Contact Us

Office: 517-996-1416


2501 Jolly Road, Suite 110
Okemos, MI 48864

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