Research Resources
About the Research Committee
Advancing nursing research in human genetics is one of ISONG’s key goals. The Research Committee fosters research in nursing, genetics, and related areas to enhance the professional and personal development of members, consistent with the vision, mission, and goals of the Society. ISONG advances research by:
- generating new knowledge
- translating new evidence into clinical practice
- evaluating the evidence base
- considering the implications of new knowledge for nursing practice and education, for patients and their families, and for the wider community
ISONG’s membership acts as a global network for sharing best practice, exchanging ideas, and encouraging collaboration, so that the global implications of local projects can be identified and discussed more readily.
To learn more or to get involved, contact the Research Committee co-chairs through the Committees page.
ISONG Position Statement: Genomic Biobanking for Research
The ISONG Position Statement on Biobanking is a clear and thoughtful statement on an important issue. Thanks to Laura Hays, PhD, APRN, CPNP-PC, FAHA; Maggie Hornung, ACGN, FNP-BC, CN-BP, DNP student; Alexis K. Hall, PhD, MSP, BSN, RN, DNP; and all members of the Ethics and Public Policy Committee who contributed to this excellent work.
Read the position statement, Genomic Biobanking for Research (PDF)
NIH Policies and Potential Resources
The link below summarizes NIH policies and potential resources, but the link is not comprehensive. NIH Investigators are required to have a data sharing plan in place, and they have a variety of choices.
NIH Research Portfolio Online Reporting Tools (RePORTER)
Genomics and Other Research Resources
Compiled by the Research Committee.
Researchers can find research resources for genetics, genomics, and other topics on this website.
Do you have a genetics or genomics research resource you would like to provide to ISONG for possible inclusion in the following table?
Submit a Resource
| Resource Link |
Organization |
Description |
Comments |
| Inclusive Community Recruitment |
AVAC
Global Advocacy for HIV Prevention |
Guide for researchers on being inclusive when recruiting participants, involving a community, and returning research results to a community |
No cost to use |
| NCI LD Link |
National Cancer Institute |
LD Link is a suite of web-based applications designed to interrogate linkage disequilibrium easily and efficiently in population groups. Each included application is specialized for querying and displaying unique aspects of linkage disequilibrium. |
No cost to use |
|
Psychiatric Genomics Consortium (PGC)
Download GWAS summary statistics
Data Access Portal
|
The University of North Carolina at Chapel Hill |
PGC contains Data Access Portal for researchers to access genetic datasets of psychiatric disorders, including ADHD, Alzheimer’s disease, autism, bipolar disorder, eating disorders, schizophrenia, major depressive disorder, OCD, PTSD, etc. |
No cost to use |
| GIANT Consortium |
GIANT Cohorts and Groups |
GIANT Consortium provides access to summarized genome-wide meta-analysis data files in Anthropometric traits. |
No Cost to Use |
| PhenX Toolkit |
PhenX has been funded by the National Human Genome Research Institute (NHGRI) since 2007. |
A Web-based catalog of recommended measurement protocols. |
No cost to use the website, citation of the site is available. |
|
WHO (World Health Organization) Framework on integrated, people-centered health services
|
World Health Organization |
Page 6 shows a framework |
No cost for this resource; directions on citing use available in the document. |
| University of Wisconsin Neighborhood Atlas |
University of Wisconsin |
Living in a disadvantaged neighborhood has been linked to several healthcare outcomes, including higher rates of diabetes and cardiovascular disease, increased utilization of health services, and earlier death 1-5. Health interventions and policies that don't account for neighborhood disadvantage may be ineffective. |
No cost for this resource, directions on citing use available on the site. |
| STRING |
STRING is part of the ELIXIR infrastructure |
STRING is a database of known and predicted protein-protein interactions. The interactions include direct (physical) and indirect (functional) associations; they stem from computational prediction, from knowledge transfer between organisms, and from interactions aggregated from other (primary) databases. |
No cost for this resource, directions on citing use available on the site. |
| UCSC Genome Browser |
University of California Santa Cruz Genome Browser |
On June 22, 2000, UCSC and the other members of the International Human Genome Project consortium completed the first working draft of the human genome assembly, forever ensuring free public access to the genome and the information it contains. |
No cost for this resource so long as it is not used for commercial purposes, citation use available on site UCSC Genome Browser conditions of use |
| CHTN Cooperative Human Tissue Network |
National Cancer Institute supported resource |
The CHTN was initiated in 1987 by the National Cancer Institute (NCI) Cancer Diagnosis Program to provide increased access to human tissue for basic and applied science from academia and industry to accelerate the advancement of discoveries in cancer diagnosis and treatment. |
There is a cost, see website for details. |
| NCI SEER Surveillance, Epidemiology, and End Results Program |
National Cancer Institute |
Good for up-to-date US statistics on cancers. These webinars help researchers learn how to use the data. |
No cost to use. |
