Dedicated to fostering the scientific and professional growth of nurses in genomics and precision health worldwide. |
Practice Resources
Resources supporting nurses who provide genomic care, maintained by the ISONG Professional Practice Committee. Contact the co-chairs with questions or suggestions.
Newborn Screening Education
Leveraging grant funding referenced below, the University of Arkansas for Medical Sciences College of Nursing developed a comprehensive newborn screening educational outreach program for families, providers, and the public. The resources are separated into family and patient resources and provider resources.
The provider resources offer free continuing education credit to a variety of healthcare professionals. While these interactive modules are specific to the Arkansas Newborn Screening Program, most aspects are generalizable to programs and healthcare systems globally, particularly descriptions of conditions commonly included in universal newborn screening programs and considerations for the care of infants identified with positive screenings of these conditions.
For further information, read the ISONG 2026 Position Statement on the Genomics Nurse’s Role in Newborn Screening.
The Health Resources and Services Administration (HRSA), Department of Health and Human Services (HHS) provided financial support for this NBS follow-up expansion. The award provided 100% of total costs and totaled $357,744 (MCHB/HRSA/HHS grant #UC1MC53085). The contents are those of the author. They may not reflect the policies of HRSA, HHS, or the U.S. Government.
Reimbursement for Genetic Services Provided by Nurses
The ISONG Professional Practice Committee conducted a survey in 2020 to assess the current state of billing practices for genetic services among registered and advanced practice nurses in the United States, in hopes of providing insight to increase reimbursement nationally, thereby improving the provision of care.
Registered and advanced practice nurses providing clinical genomic care in the United States were eligible for this survey. Fifty-three nurses (9 RNs, 44 APRNs) completed this survey, representing 24 of 50 states and US jurisdictions. Though billing practices vary by state, facility, and insurer, we identified the most common billing codes used, the percent of services reimbursed by procedure code, and barriers to and challenges with reimbursement.
Members can log in to view the presentation recording.
Learning from Nurses in Genetics and Genomics Practice
Members of the ISONG Professional Practice Committee are eager to share their expertise with individuals interested in learning more about genetics and genomics nursing. We are prepared to respond to questions and provide brief mentoring experiences.
Email info@isong.org with specific questions or a request for mentoring in a specialty clinical area. Put “Opportunity for Learning” in the subject line and include your name and contact information.
Credentialing
ISONG works with the Nursing Portfolio Credentialing Commission (NPCC) on credentialing for genetics and genomics nursing.