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genomics Education Resources repository

Genomics Education Resources: for self-guided learning or resources to help add genomics into your nursing curriculum and Practice

Compiled by:  ISONG Global Membership and Education Committees

Updated: 4/8/2021

Resource

Organization

Description

Under-graduate

Graduate/
Research

Clinical

Help Me Understand Genetics

U.S. National Library of Medicine/Medline


Links to fundamental information about genetics created for the general public

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    X

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    Genome: Unlocking Life’s Code

    Smithsonian National Museum of Natural History and National Human Genome Research Institute

    Resources and tools for an understanding of current topics in genomics, the technology driving advances in genetics and genomics, and the effects of genomics in our lives and on our society

      X

      Virtual Genetics Education Centre

      Virtual Genetics Education Centre

      Genetics teaching resources for teachers and learners in schools and higher education, health professionals and the general public simple experiments suitable for all ages tutorial material videos on useful techniques links to other evaluated resources

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        X

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        Telling Stories, Understanding Real Life Genetics

        NHS Health Education England

        Free education resource for nurses/midwives and their educators - >100 stories from individuals with or at risk of a genetic condition, family members and health professionals, linked to additional resources and activities to support teaching/learning.

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          X

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          Our Molecular Selves

          National Library of Medicine

          A 3D computer-animated 3.5 minute video illustrating basic components and principles of molecular biology.

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          X

          X

          DNA from the Beginning  DNA from the Beginning sponsored by Cold Spring Harbor   An animated primer of 75 experiments which are the basis of modern genetics.   X  X  X

          Online Genetics Education Resources

          National Human Genome Research Institute

          • This is a compilation of genetics education resources
          • It includes networking sites, documentary films, lectures, booklets, activities and programs

          X

          X

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          Your Genome

          Wellcome Genome Center

          • Educational offering, including interactive videos and games for high-school and undergraduate students related to genetics, health and society

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          Learn Genetics

          The University of Utah

          • Educational website that provides engaging, multimedia educational materials concerning a variety of topics including genetics
          • Excellent DNA to RNA transcription activity
          • No curation date on website

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          X

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          Talking Glossary

          National Human Genome Research Institute

          • Features more than 250 common genetic terms pronounced and explained with images, animation and links to related terms.

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          X

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          Jackson Lab Genome Education-online learning

          Jackson Lab Genome Education - high school and undergraduate

          The Jackson Laboratory

          • STEM resources for high school and undergraduate students.
          • Features both animal and human genomic resources
          • Compilation of graduate and specialty training in genetics

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          Clinical Education at JAX

          The Jackson Laboratory

          • Library of free online courses re genetic/genomic healthcare with CE credits
          • Site also has rich resources re personalized medicine

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          X

          X

          Genetics Generation

          University of San Diego

          Knowledge center created by undergraduate students to improve public understanding of current genetic technologies and the ethical questions they raise

            X

            X

            National Human Genome Research Institute Education  National Human Genome Research Institute - About Genomics Public Information suitable for High School and above.    X  X  X

            Gene Review

            NCBI Bookshelf

            International point-of-care resource for inherited conditions in a standardized journal-style format, covering diagnosis, management, and genetic counseling for patients and their families

              X

              X

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              ESH Genetic Education Materials and Resources (euroGEMS)

              European Society of Human Genetics

              A repository of materials and resources for genetic professionals, universities/students, patients and families, primary schools, secondary schools, and ELSI topics

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                X

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                Genomics Education Programme

                NHS Health Education England

                •  Educational offerings for health professionals
                • Teaching resources and Genomics glossary

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                X

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                Gen-Equip Project

                Partnership of Experts in Primary Care Genetics

                • A project that combines education, primary care, and genetics
                • This group aims to enable health professionals working in primary care to understand and use genetics in practice
                • Includes online learning modules, webinars, practical tools, case studies and more

                X

                X

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                Health Centre for Genetics Education- Australia

                NSW Government (Government of New South Wales)

                • Links for individuals and families
                • Links for general practitioners
                • Links for health professionals
                • Fact sheets and resources

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                X

                X

                Genomics & Precision Health Educational Resources

                Centers for Disease Control and Prevention

                • Links for general public educational resources
                • Links for health care professionals such as case studies, newborn screening
                • Links for policy makers
                • Links for teachers

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                X

                X

                PharmGKB

                PharmGKB

                Comprehensive resource that curates knowledge about the impact of genetic variation on drug response for clinicians and researchers.

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                X

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                FDA Table of Pharmacogenomic Biomarkers in Drug Labeling

                U.S. Food and Drug Administration

                Provides a table which lists therapeutic products and biomarkers from Drugs@FDA with pharmacogenomic information found in the drug labeling.

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                Genomic Nursing Cyberhub

                Washington State University

                • Web-based hub to support genomic nursing education
                • Nurse educators can arrange for their students to take a standardized test of genomic literacy for nurses

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                Genetics/Genomics Competency Center - Genetics/Genomics Education for Your Classroom or Practice

                G2C2 (Genetics/Genomics Competency Center)

                • Collection of peer-reviewed genomics educational materials for genetic counselors, nurses, pharmacists, physician assistants, and physicians
                • Resources are mapped to discipline-specific genomic competencies

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                Baby’s First Test

                Baby’s First Test

                • US resource center for newborn screening.
                • Provides general information and condition-specific information about newborn screening, and state-specific regulatory information
                • Includes Resources tab with educational materials

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                Flockhart CYP450 Drug Interaction Table

                Indiana University School of Medicine

                • Provides table of substrates of cytochrome P450 enzymes for quick look-up (useful for learning activities)
                • Additional tables show drug inhibitors and activators

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                X

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                National Society of Genetic Counselors National Society of Genetic Counselors (NSGC) Provides genetic education, policy statements, webinars and a database to locate credentialed genetic professionals.    X  X
                Genomic Medicine for Health Care Professionals  National Human Genome Research Institute (NHGRI) Up-to-date genetics and genomics information related to patient management, curricular resources, new National Institutes of Health and NHGRI research activities, and ethical, legal and social issues.   X  X

                G3C (Global Genetics and Genomics Community)

                Global Genetics and Genomics Community (G3C)

                • Repository of genomic health care simulations
                • Unfolding case studies and links to additional resources for basic introduction to genetics

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                X

                National Coordinating Center for Regional Genetic Networks

                American College of Medical Genetics and Genomics

                • Links to resources for seven Regional Genetics Networks (RGNs), a National Coordinating Center (NCC), and the National Genetics Education and Family Support Center (NGEFSC)
                • Links to resources to improve the health of medically underserved by promoting the translation of genetic medicine into public health and health care services.

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                X

                Medline Plus Genetics

                U.S. National Library of Medicine/Medline Plus

                • Resources for consumer-friendly information about the effects of genetic variants on human health  
                • Provides basic information about gene, chromosomes, and genetic conditions.

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                X

                Omics Nursing Science and Education Network (ONSEN)

                National Institute of Nursing Research

                • Resources for investigators, mentors, and trainees plus education and networking opportunities
                • Resources for training for integration of omics
                • Common data elements support
                • Exploring partnerships in omics research

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                X

                Pharmacogenomics Research Network

                Pharmacogenomics Research Network

                • A forum to advance, promote, support, encourage and facilitate communication among researchers, educators and practitioners in pharmacogenomics and related sciences through scientific meetings, seminars, publications and related activities
                • Offers a curated set of resources and tools to support data analysis of related to pharmacogenomic research

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                Biochemgen University of California San Diego (UCSD) Biochemical Genetics and Metabolomics Laboratory A searchable list of biochemical genetic tests and the laboratories that offer each.    
                Pharmacogenomic Research Network Resource NIH National Cancer Institute Links to resources that may be of interest to cancer researchers interested in the area of pharmacogenomics    X  X

                Clinical Pharmacogenetics Implementation Consortium (CPIC®)

                Partnership between PharmGKB and Pharmacogenomics Research Network

                An international consortium facilitating use of pharmacogenetic tests for patient care.

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                  Genetic Information Non-discrimination Act

                  Genetic Alliance / Genetics and Public Policy Center / National Coalition for Health Professional Education in Genetics

                  Information regarding protection of genetic information, targeted to the general public

                    X

                    X

                    Method for Introducing a New Competency: Genomics (MINC)

                    National Human Genome Research Institute

                    • A toolkit providing links to external resources, clinical exemplars for integrating genetics/genomics into healthcare systems
                    • Interactive, evolving case studies to test genetic nurse competencies

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                    The Genetic Counseling Cultural Competence Toolkit   National Society of Genetic Counselors An online resource portal to provide culturally and linguistically appropriate health care services. The website includes 9 extensive cases that have been approved for Category 1 CEUs for genetic counselors and as an interdisciplinary continuing education opportunity for nurses and other health disciplines.      X  X
                    Heritable Disorders in Newborns and Children - Education and Training Work Group Health Resources & Services Administration (HRSA) A Communication Guide to help nurses and APRNs to frame the initial notification and discussion with parents about positive/abnormal/out of the range newborn screening results.     X    X  
                    Online Mendelian Inheritance in Man®  Online Mendelian Inheritance in Man® (OMIM)  An Online Catalog of Human Genes and Genetic Disorders    X  X
                    MIT Open Courseware   Massachusetts Institute of Technology (MIT) Several courses from 2004 – 2014 addressing Functional Genomics may be useful for graduate and clinical settings.      X  X

                    Genetics 

                    Seattle Children’s Hospital

                    Resources presented at an 8th grade reading level directed toward families of children with genetic conditions

                      X

                      Genetic Counseling

                      Seattle Children’s Hospital

                      Genetic counseling information presented at an 8th grade reading level for families of children with genetic conditions

                        X

                        Biochemical Genetics

                        Seattle Children’s Hospital

                        Resources for families of children with metabolic conditions, presented at an 8th grade or lower reading level.

                          X

                          FORCE – Facing Our Risk of Cancer Empowered

                          FORCE (Facing Our Risk of Cancer Empowered)

                          Resource to improve the lives of individuals and families facing hereditary cancer

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                            Cystic Fibrosis: Sam's story

                            YouTube

                             Case study of individual with cystic fibrosis

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                              Hemophilia and the Fencer: Luke's story today

                              YouTube

                               Case study of individual with hemophilia

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