European Region

Regional Ambassador 

Caroline Benjamin, RGN MSc PhD
University of Central Lancashire (UCLan)
Preston, United Kingdom

Email: cbenjamin1@uclan.ac.uk

Notes from the United Kingdom

Population and basic demographics      

Cultural profile

The healthcare systems in place

Role of nurses and nurse training

Genetics services

The role of nurses in genetics

Please click on the links for information

Europe - Genetic Nursing

The European Board of Human Genetics has recently set up an accreditation system for nurses or genetic counsellors working within Europe. There are currently 39 European Registered Genetic Nurses or Counsellors https://www.eshg.org/634.0.html. The role and practice of genetic nurses varies across Europe and has been the focus of a recent paper 'A study of the practice of individual genetic counsellors and genetic nurses in Europe' H Skirton et al. Journal of community genetics, 2013 and Knowledge of genetics and the role of the nurse in genetic health care: a survey of Italian nurses L Godino et al. - Journal of advanced nursing, 2013. Often genetic nurses and genetic counsellors (many from a nursing background) work together within genetic services. 

Related Links

The European Soiciety of Human Genetics
https://www.eshg.org

http://www.eurogene.org

MRC Human Genetics Unity - The University of Edinburgh
http://www.hgu.mrc.ac.uk

British Society for Genetic Medicine
http://www.bsgm.org.uk

The Genetics Society
http://www.genetics.org.uk

Cutch Society for Human Genetics
http://www.nvhg-nav.nl/Default.aspx

Medizinische Universität Innsbruck
https://www.i-med.ac.at/mypoint
(displayed in Austrian)

German Society of Human Genetics
http://gfhev.de
(displayed in German)

Irish Society of Human Genetics
http://irishsocietyofhumangenetics.blogspot.com/

Societa Italiana di Genetica Umana
http://www.sigu.net
(displayed in Italian)

Swiss Society of Medical Genetics
http://www.sgmg.ch/