ISONG Educational Resources
Please visit the ISONG Webinars for more educational opportunities!
Online Resources for Health Professionals:
Genetics Program for Nursing Faculty
At the Cincinnati Children's Hospital Medical Center, the Genetics Program for Nursing Faculty is a multifaceted genetics educational program for nursing faculty made possible through funding from the Ethical, Legal, and Social implications Research Program of the National Genome Research Institute of the National Institutes of Health. https://www.cincinnatichildrens.org/education/clinical/nursing/genetics
Genetics/Genomics Competency Center -- Offers free and fee- based courses. Peer-reviewed collections for genetic counselors, nurses, pharmacists, physician assistants, and physicians. Visit https://genomicseducation.net/.
Heritable Disorders in Newborns and Children - Education and Training Work Group - This resource can assist nurses and APN's who work with new born screening. Within the link is a Communication Guide to help frame the initial notification and discussion with parents about positive/abnormal/out of the range newborn screening results. https://www.hrsa.gov/advisory-committees/heritable-disorders/resources
Information for Genetic Professionals - at the University of Kansas Medical Center is updated regularly for genetic counselors, clinical geneticists, and medical geneticists with links to a variety of clinical, research and educational resources.
The Genetic Counseling Cultural Competence Toolkit is an online resource portal for genetics service providers interested in enhancing their ability to provide culturally and linguistically appropriate health care services. The website, developed with a JEMF (Jane Engelberg Memorial Fellowship) grant of the National Society of Genetic Counselors, features a network of links and resources on cross cultural communication and multilingual resources, health disparities and national standards, health literacy, clinical tools, teaching tools, etc. The website also includes 9 extensive cases that have been approved for Category 1 CEUs for genetic counselors and as an interdisciplinary continuing education opportunity for nurses. Continuing education credits are also available for medical interpreters and translators; students and other interested adult learners can earn a learning certificate for completing the case series.
Telling stories, understanding real-life genetics is a web-based multi-media education resource that uses real-life stories from the public and professionals to promote knowledge and understanding of genetics and how it impacts on people's lives. The collection of 100 stories from individuals, patients, caregivers and professionals in text and video formats that have an educational framework for students in healthcare and established professionals that desire to experience these stories. http://www.tellingstories.nhs.uk
Genomics Education Program is a British website for health care providers with resources that has online certificate & degree programs, as well as in-person courses https://www.genomicseducation.hee.nhs.uk/courses/
Global Genetics and Genomics Community has genetic and genomic healthcare simulations; users can interview simulated patients, interpret family histories, identify risks, and apply guidelines to patient care. https://genomicscases.net/en
Genomic Medicine for Health Care Professionals provides reliable, up-to-date genetics and genomics information related to patient management, curricular resources, new National Institutes of Health and NHGRI research activities, and ethical, legal and social issues. Visit https://www.genome.gov/27527599/genomic-medicine-for-health-care-providers
Online resources for the Public:
The Genetics Home Reference - for users who would like more general information about genetics. "Help Me Understand Genetics" provides a basic explanation of how genes work and how mutations cause genetic disorders. It also includes current information about genetic counseling, genetic testing, gene therapy, and the Human Genome Project.
NHGRI - for the National Human Genome Research Institute at the National Institutes of Health. Additional resources related to genetics from the NHGRI include: SpanishTalking Glossary of Genetics. This is a very helpful glossary using an innovative combination of text, illustrations and audio commentary in an accessible, user-friendly format. It is available free on NHGRI’s web site.
OMIM - Online Mendelian Inheritance in Man. This database is a catalog of human genes and genetic disorders. Visit www.ncbi.nlm.nih.gov/sites/entrez?db=omim
National Human Genome Research Institute Education Public Information suitable for High School and above, no continuing education credits available https://www.genome.gov/education/
MIT Open Courseware MIT Open Courseware has previous course content; Search for Health and Medicine with a subtopic of Functional Genomics there several courses from 2004-2014 that may be of interest. No continuing education credits available. https://ocw.mit.edu/index.htm
University of Utah Genetic Science Learning Center Public Information suitable for High School and above, no continuing education credits available https://learn.genetics.utah.edu/
Cold Spring Harbor animated primer of 75 experiments that made modern genetics Animated Primer Experiments regarding genetics that are appropriate for High School and above. No continuing education credits available. http://dnaftb.org/#classical
Pharmacogenomic Research Network Resource Page. https://epi.grants.cancer.gov/pharm/gen-resources.html
Biochemgen - a searchable list of biochemical genetic tests and the laboratories that offer each. Visit http://biochemgen.ucsd.edu/
GeneTests - Database of biochemical genetic tests and information of laboratories offering testing Visit www.genetests.org/
Genome Testing Resources
Clinvitae - is a data base of clinically observed variants aggregated from public sources with information about the significance of a specific mutation. http://clinvitae.invitae.comOrganizations
National Institute of Nursing Research - Provides information for developing nurse scientists through multiple training opportunities. There are several programs for graduate & undergraduate nursing students to train at NIH for scientific partnerships: including Summer Genetics Institute, Graduate Partnerships Program, and other fellowships.” http://bit.ly/2jULN60
National Society of Genetic Counselors- offers genetic education, policy statements, webinars and a database to locate credentialed genetic professionals. http://www.nsgc.org
Oncology Nursing Society - offers continuing education online, certifications, conferences and scholarships. http://www.ons.org