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upcoming Events & webinars


    • 19 Apr 2017
    • 12:00 PM
    • 01 Apr 2020
    • 1:00 PM
    • Webinar

    Genetics and Implications of Metabolic Newborn Screening for Nurses

    Presented by
    Sarah Viall, MSN, PPCNP-BC

    This session will briefly address the history of newborn screening, including the philosophy and technology behind the expanded newborn screen and the general logistics of its implementation nationally. The focus of the presentation will be a discussion of actions to be taken following abnormal results using lecture and case-study format with particular emphasis on the metabolic disorders more rarely diagnosed and discussed (i.e. fatty acid oxidation, organic acidurias, enzyme deficiencies). This webinar will include the basic pathophysiology of metabolic and genetic disorders, signs and symptoms to monitor prior to newborn screen results, indications indicative of false versus true positives, and resources available to assist in making clinical decisions and informing families of results.

    Who Should Attend?
    Any nurse working in Genetics or Primary Care, particularly those working in the care of newborns or infants.

    By the end of the webinar the attendees will be able to:

    1. Identify at least one source of information pertinent to the newborn screening program of the state or territory in which you practice.
    2. Differentiate between the distinct newborn screening disorder categories.
    3. Identify publicly available resources to assist in the nursing practice of triage and response to abnormal newborn screens.

    Sarah Viall, MSN, PPCNP-BC
    Newborn Screening and Telegenetics Program  Director
    Division of Genetics and Metabolism
    Children's National Health System
    Washington, DC USA

    Sarah Viall graduated from the Yale School of Nursing Pediatric Nurse Practitioner Program in 2012. Since that time she has worked as the Newborn Screening Follow-up Director of the Rare Disease Institute at Children's National Health System in Washington, DC. There, she specializes in the follow-up of newborns and children with metabolic disorders detected by newborn screening.

    $25.00 for ISONG Members
    $50.00 for Non-Members
    $15 for Students 

    Contact Hours
    ISONG is collaborating with the University of Pittsburgh School of Nursing to provide this learning activity.  Participants completing this activity will receive a maximum of one hour of continuing nursing education contact hours. The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

    • 17 May 2017
    • 4:00 PM
    • 15 May 2020
    • 5:00 PM
    • Webinar

    Women at Increased Risk for Breast Cancer Based on Family History:
    Calculating Lifetime Risk and Ordering Screening MRI Based on CurrentU.S. Guidelines

    Presented by
    Deborah O. Himes

    Presented by
    Amanda Gammon
    MS, CGC

    Several organizations recommend healthcare providers offer annual breast MRI to women with lifetime risk for breast cancer above 20%.  In this webinar, Deborah O. Himes and Amanda Gammon will review U.S. breast cancer screening guidelines and risk assessment models. The presenters will provide step-by-step instructions for calculating lifetime risk using the Tyrer-Cuzic model. Additionally, they will present a clinical decision making model to help assess which should  be referred for additional risk assessment and/or referral for genetic counseling.

    Who Should Attend?
    This presentation is intended for primary healthcare providers including nurses, nurse practitioners, physician assistants, and physicians who care for women who may be at increased risk for breast cancer.

    1. During this presentation attendees will learn to calculate lifetime risk for breast cancer using the Tyrer-Cuzick model.
    2. After this presentation, attendees will be able to explain differences in risk for breast cancer among women in differing risk categories (population, familial, hereditary) and screening guidelines based on risk category (mammography and breast MRI).
    3. After this presentation attendee will be able to describe three different models used for calculating lifetime risk for breast cancer.
    4.  Following this presentation attendees will understand how to select patients for in-depth risk assessment and/or referral for genetic counseling related to breast cancer risk. 

    Deborah O. Himes, PhD, APRN-BC, ANP 
    Asssitant Proffessor
    Brigham Young University
    College of Nursing
    Provo, Utah USA

    Amanda Gammon, MS, CGC
    Assistant Director, Genetic Counseling Graduate Program
    Licensed Genetic Counselor
    Family Cancer Assessment Clinic
    Provo, Utah USA

    $10.00 for ISONG Members and Students
    $15.00 for Non-Members

    Contact Hours
    ISONG and the University of Pittsburgh School of Nursing are collaborating to provide this learning activity. Nurse participants completing the activity and the evaluation tool will receive one (1) continuing nursing education contact hour.  The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

    • 13 Dec 2017
    • 11:00 AM
    • 13 Dec 2020
    • 11:30 PM
    • webinar Listen On-Demand and earn CE's!

    The Hope and Hype of Genomic Medicine

    Presented by
    Kevin T. FitzGerald, SJ, PhD, PhD

    Almost daily one can find reports in the media touting new and exciting advances in genetic research and genomic medicine. Often implicit in these reports are multiple assumptions about how these advances will benefit our health care and society. The intent of this presentation is to examine some of these new medical technologies and the assumptions often associated with them as to how they will benefit us, to then elucidate fundamental problems inherent in these assumptions, and, finally, to suggest perspectives that could result in a better integration of these genetic and genomic advances into our health care systems and our society.

    Who should Attend?
    Health care providers, educators, researchers, and anyone else interested in learning about the genomic undergirdings of health and associated ethical considerations should attend this webinar. Anyone interested in learning about the ethical considerations of genomic medicine from the a unique perspective of a priest should attend this webinar. 


    1. To provide an explanation of genetic/genomic medicine as undergirding a new approach to healthcare.
    2. To provide the explication of some of the significant ethical issues raised by genetic/genomic medicine.
    3. To provide possible approaches for addressing the ethical issues raised.

    This webinar is free to ISONG members! 


    • 21 Mar 2018
    • 4:00 PM
    • 02 Mar 2020
    • 5:00 PM
    • Webinar

    ISONG Webinars are now available for institutions!

    This is an opportunity to provide an educational session while providing continuing educational credits in your setting. CE credits are available at $5/each certificate.

    The International Society of Nurses in Genetics (ISONG) is a global specialty nursing organization dedicated to genomic healthcare, education, research, and scholarship. ISONG is known globally for providing high quality educational symposia, presentations, and webinars that provide expert information for nurses using and integrating genomics into their practice, education and research.   

    Webinars provided by ISONG offer valuable genomics-related content, delivered with credibility and authority to nurses interested in gaining low-cost, dedicated access to experts for an hour. ISONG takes careful preparation of matching the expertise of its webinar presenters with the needs of a global nursing audience, with applications to many varied diseased states.  We also place importance on the delivering vital education using text, verbal, and human interaction to optimize learning and allowing for the ability to emphasize key points, theory, and facts to the learner.

    Promoting the continuing education of nurses, ISONG webinars offer continuing nursing education credits. The credits are offered at an optimal price point for the quality and level of learning received and viewing the webinars are at your convenience! 

    Click here to view all ISONG webinars and descriptions. 

    • 17 Apr 2018
    • 16 Apr 2021
    • Webinar

    What Do We Know About Genomics and Alzheimer’s Disease?

    Presented by
    Julie Eggert, PhD, GNP-BC, AGN-BC, AOCN, FAAN

    Providers and researchers will learn more about state of the science in Research and Guidelines. Current research focusing on the genomics of this disease will be described and discussed.

    Who Should Attend?
    Health care providers, educators, researchers, clinical staff working in geriatrics, students, family members of patients with Alzheimer's Disease, and anyone else interested in learning about the relationship between Alzheimer's and genomics. 

    New registration costs for this webinar(rates include ce credits):
    $10.00 for ISONG Members
    $15.00 for Non-Members

    Objectives - After this presentation attendees will know/learn:

    • Review and update the pathophysiology of Alzheimer’s Disease (AD)
    • Describe the genetic mutations/changes (including epigenetics, mitochondrial DNA and telomeres) associated with early onset and late onset AD.
    • Explain known AD therapies and clinical trials for the treatment of this disorder.
    • Discuss the role of the International Genomics Alzheimer’s Project (IGAP) in research.

    Julie Eggert PhD, GNP-BC, AGN-BC, AOCN, FAAN
    Professor Emerita
    Former PhD Program Coordinator, Healthcare Genetics
    School of Nursing/College of Behavioral Social and Health Sciences
    Clemson University 
    Clemson, South Carolina USA

    Dr. Eggert has worked with the elderly most of her professional life.  She taught a Geriatric Nursing course to masters students working on their nursing practice degrees as an FNP and also an Advances in Geriatrics course for GNP students.  In her geriatric faculty role she implemented Geriatric Oncology seminars for providers.  Most recently she wrote a chapter in the Beery, Workman and Eggert - Genetics and Genomics in Nursing and Health Care, 2nd edition entitled “Common Adult-Onset Genetic Disorders which included Alzheimer’s Disease”.  She recently retired as the Coordinator of the Healthcare Genetics PhD program in the School of Nursing at Clemson University in SC, USA and is now functions as a Professor Emerita. 

    Contact Hours
    ISONG and ANA-NY are collaborating to provide this learning activity.  Nurse participants completing the activity and the evaluation tool will receive one (1) continuing nursing education contact hour.  The Northeast Multi-State Division is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

    • 10 Jul 2018
    • 10:00 AM
    • 10 Jul 2022
    • 11:00 AM
    • Webinar

    Identifying and Treating Monogenic Diabetes

    Presented by
    Maggie Shepherd, RGN, PhD

    This webinar will provide an update on monogenic diabetes, highlighting how to identify possible cases and the impact of a genetic diagnosis. Genes causing both maturity onset diabetes of the young (MODY) and neonatal diabetes will be discussed. Simple and inexpensive steps which can be taken to aid differential diagnosis will be described. Case studies will be used to highlight the specific characteristics associated with different types of monogenic diabetes, ensuring the appropriate tests are recommended, enabling accurate diagnosis and most appropriate treatment. Ensuing treatment changes, implications for other family members and the emotional impact of a ‘new genetic diagnosis’ and the consequence of stopping insulin injections, even after many years on this treatment, will be discussed.

    Who Should Attend?
    This webinar will be of interest to all healthcare professionals involved in diabetes care. No previous experience of monogenic diabetes will be required. Any healthcare professionals looking to ensure their patients have the correct diagnosis and treatment and interested in increasing their awareness of monogenic diabetes should attend.

    During this presentation attendees will learn:

    • How to identify individuals likely to have monogenic diabetes
    • Aids to differential diagnosis (for example use of MODY probability calculator, c-peptide and antibodies)
    • Where to access more information on monogenic diabetes

    Maggie Shepherd, RGN, PhD
    Honorary Clinical Professor
    University of Exeter Medical School
    Medical Research
    Exeter, United Kingdom 

    Maggie trained as an RGN at King’s College Hospital and worked as Diabetes Specialist Nurse in Greenwich prior to joining the monogenic diabetes team in Exeter in 1995.  She has a PhD in Medical Science and qualifications in Medical Education, Genetic Counselling and Genomic Medicine. Also, she is the Honorary Clinical Professor at the University of Exeter Medical School, Lead Nurse for Research at the Royal Devon and Exeter NHS Foundation Trust and lead co-ordinator of the national, award winning Genetic Diabetes Nurse project.

    Particular interests include increasing awareness of monogenic diabetes, ensuring correct diagnosis and treatment.  Maggie has over 100 publications (30 first author) and is an Editorial Board member of the European Diabetes Nursing Journal.

    Maggie delivered the Janet Kinson award lecture at DUK in 2003, is a member of the team receiving the Queens Anniversary Prize for Higher and Further Education in 2006, Hospital Doctor Academic Medicine Team of the Year 2005 and BMJ diabetes team of the year 2016. 

    $10.00 for ISONG Members and Students
    $15.00 for Non-Members

    Contact Hours

    ISONG and ANA-NY are collaborating to provide this learning activity. Nurse participants completing the activity and the evaluation tool will receive one (1) continuing nursing education contact hour. The Northeast Multi-State Division is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

    • 07 Nov 2018
    • 12:00 PM
    • 05 Nov 2021
    • 1:00 PM
    • webinar

    Direct to Consumer Genetic Testing Webinar

    Presented by
    Nicole Osier, PhD, RN

    The purpose of this webinar is to provide the learner with fundamental information regarding the rapidly growing field of direct to consumer testing. The goal is to provide learners with a strong foundation as well as resources to find additional reputable information. Topics for discussion include: (1) what direct to consumer genetic testing is and why it has become so popular; (2) applications of direct to consumer testing and the type of information they can provide; (3) how the testing works; (4) the strengths and limitations of direct-to-consumer testing; (5) factors that can impact results; (6) implications of direct-to-consumer testing on health care. Case studies from several clinical settings will be provided.

    Who Should Attend?
    Clinicians who have patients who have or may come to them with direct to consumer genetic testing results

    • Anyone who has pursued or is considering direct to consumer genetic testing
    • Anyone who is interested in genetic testing for ancestry

     - After this presentation attendees will know/learn:

    • Interpret direct to consumer genetic testing results in light of relevant personal and
       lifestyle characteristics.
    • Understand the strengths and limitations of direct to consumer ancestry tests.
    • Evaluate the real or potential ethical, legal, social, and financial implications of direct to consumer testing.

    Dr. Osier is an Assistant Professor and new addition to the University of Texas at Austin faculty. She holds joint appointments in the School of Nursing (Division of Holistic Adult Health) and Dell Medical School (Department of Neurology). Dr. Osier also serves as the Director of the Biobehavioral Core of St. David’s Center for Health Promotion and Disease Prevention Research in Underserved Populations (CHPR). Dr. Osier’s training background includes dual bachelor’s degrees from Michigan State University (in Nutritional Science and Nursing), a PhD from the University of Pittsburgh (in Nursing with an emphasis on Molecular Genomics), and a post-doctoral fellowship at the National Institutes of Health (in Nursing with an emphasis on Protein Quantification).

    To-date, Dr. Osier’s program of research has centered on using both pre-clinical and clinical research to promote understanding the molecular and genomic underpinnings of health, disease, and injury recovery. Her current research focuses on understanding the pathology associated with traumatic brain injury (TBI). Her ultimate goal is to harness this information to predict individuals at highest risk for poor outcomes and ultimately to inform precision care initiatives. Dr. Osier teaches Genetics in Health Care to undergraduate students, where she strives to incorporate innovative experiential learning methods.

    CE Credits
    ISONG and ANA-NY are collaborating to provide this learning activity.  Nurse participants completing the activity and the evaluation tool will receive one (1) continuing nursing education contact hour.  The Northeast Multi-State Division is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

    $10.00 for ISONG Members
    $10.00 for ANA NY Members with code
    $15. 00 for Students
    $15.00 for Non-Members

    Thank you to our sponsor: 

    23andMe resources for clinicians:

    ·  23andMe’s website for clinicians: view sample genetic reports, webinars and FAQs

    · 23andMe’s Ancestry Composition report

    For questions, contact medical@23andMe.com

    • 29 May 2019
    • 30 Jun 2019
    • online

    Greetings, ISONG Members!

    I am pleased to invite nominations for the 2019 ISONG Founders’ Awards. The purpose of these awards is to honor ISONG members who have demonstrated excellence in genomic nursing practice, education or research. The ISONG Founders' Awards were established in 1996 during the transition between the presidencies of Shirley Jones and Janet Williams. One of the highest forms of recognition one can receive is a tribute from one's peers. The ISONG Founders' Awards make it possible for ISONG as a professional organization to recognize members who are leaders in genetic/genomic nursing and health care.

    Up to three Founders' Awards may be presented each year in Practice, Education and Research. The three fields reflect the vision of ISONG to advance genomic nursing practice, education and research worldwide. The Awards are presented at the ISONG Annual Congress, which will be held this year in San Antonio, Texas, USA, on November 8-10, 2019.

    General criteria for a nomination include the following:

    1) Nominee and nominator are both current members of ISONG.
    2) Nominee has demonstrated excellence in genetic/genomic nursing practice, education or research.
    3) Nomination form for the Practice, Education or Research Award is completed and submitted by email to: melinda.tinkle@sdstate.edu by Friday, June 28, 2019.

    Please Click Here for the nomination form. Should you have any questions regarding the ISONG Founders' Awards nominations or the submission process, please contact me at melinda.tinkle@sdstate.edu.


    Melinda Tinkle, PhD, RN, WHNP-BC, FAAN

    Past President
    Chair, ISONG Awards Committee

    Click here to see the 2018 ISONG Founders' Awards Recipients - Congratulations to all of the award winners!


    • 07 Nov 2019
    • 7:30 AM (EST)
    • 10 Nov 2019
    • 12:00 PM (EST)
    • Wyndham San Antonio Riverwalk, San Antonio, Texas USA

    Please join us for this exceptional educational event - 2019 ISONG World Congress!
    ~Pre-Congress on Thursday, November 7~

    The 2019 ISONG Preliminary Congress Brochure is available here.

    ISONG Members:  Please log in first to see the discounted member rates.

    On behalf of the 2019 ISONG Congress Planning Committee, we invite you to join us at the 2019 Congress; “Transforming Health through Genomic Nursing." The Wyndham San Antonio Riverwalk will be the perfect setting to connect with genetics and nursing colleagues from around the world. 

    Nurses are called to transform healthcare and genetics/genomics nurses will be at the forefront of that transformation.  We look forward to exciting presentations by our keynote speakers, and abstract and poster presenters.

    New for this year, we will have Expert Lectures by ISONG members who are transforming health through innovations in research, education, practice and policy. The presentations have been chosen to meet the following objectives:

    • Understand the transformative nature of genomic nursing science on global health.
    • Explore future applications of genomic nursing to foster healthy populations.
    • Articulate the role of nurses in leading advances in genomic health.

    Additionally, the Education Committee and the Congress Committee are excited to offer Pre-Congress Sessions based on survey feedback.  These sessions will take place on Thursday, November 7, 2019.

    We encourage you to join us in San Antonio and look forward to greeting you.  Please remember the vital support of our Congress sponsors and visit each exhibit to learn about new and valuable contributions to health care and education.

    Please join us!  Click here for hotel information and reservations.

    More information will be available soon.

    Contact Amy Spikula at amy@isong.org if you have any questions.

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