Genetics and Nursing Sites

• Genetics Program for Nursing Faculty
  At the Cincinatti Children's Hospital Medical Center, the Genetics Program for Nursing Faculty is a multifaceted genetics educational program for nursing faculty made possible through funding from the Ethical, Legal, and Social Implications Research Program of the National Human Genome Research Institute at the National Institutes of Health.

• Genetics Interdisciplinary Faculty Training (GIFT) Program
  A genetics educational program for faculty teams from nurse practitioner, physician assistant, and nurse-midwifery programs. The goal of the program is to incorporate genetics into the graduate curricula for primary care providers in nursing. There is no cost to our participants. All cost is funded by a cooperative agreement with HRSA.

Genetic Sites

• Biochemgen
  a searchable list of biochemical genetic tests and the laboratories that offer each.

• Communities of Color and Genetics Policy Project
  Site for a 5 year project to establish policy recommendations through a process involving lay and professional focus groups with a special attempt to involve African American and Latino communities.

• European Genetics Foundation
  the aim is to establish a center of excellence in genetics for European communities.

• GeneTests
  A genetic testing resource which provides listings of clinical and/or research laboratories performing testing for heritable disorders.

• HUM-MOLGEN
  is a moderated, interactive communication and information listserve in human genetics. Anybody interested in human genetics and molecular biology can (without charge) subscribe to the mailing list, called HUM-MOLGEN and communicate directly with all other members at the same time. HUM-MOLGEN has 10 different topics. They are: NEWS in Human Genetics, CALLs for collaboration, ANNOuncements, LITErature, REVIews, ETHIcal and social issues, DIAGnostics, COMPutational Genetics, SPECial topics in Genetics, BIOTechnology. Subscribers can choose the topics from which to receive messages.

• The Human Genome Program of the Department of Energy
  includes Primer on Molecular Genetics and To Know Ourselves. Also see Educational Resources.

• Human Genome Project Information
  home page maintained by the Human Genome Management Information System (HGMIS) for the U.S. Department of Energy Human Genome Program. Explore this site for material about the history, progress, research, and resources of the Human Genome Project.

• Information for Genetic Professionals
  at the University of Kansas Medical Center is updated regularly for genetic counselors, clinical geneticists, and medical geneticists with links to a variety of clinical, research and educational resources.

• National Breast Cancer Coalition
  Includes information about legislation to prevent insurance discrimination.

• National Cancer Institute Health Professionals--Genetics
  National Cancer Institute's section on genetics for health care professionals.

  Additional resources related to genetics from the NCI include:

  Statement on Genetic Testing for Cancer Risk

  Familial Cancer Risk Counseling and Genetic Testing Directory

• National Coalition for Health Professional Education in Genetics
  (NCHPEG) is a national effort to promote health professional education and access to information about advances in human genetics.

• National Institutes of Health: Ethical Issues in Research Involving Human Participants
  A bibliography of 4,650 publications from Jan, 1989 to Nov, 1998.

  Additional resources related to genetics from the NIH include:

  Bioethics Resources on the Web
  NIH site of weblinks to resources on bioethics

  ELSI Research and Resources
  HGPI's site for the joint NIH and DOE ELSI program.

  Guide to Ethics and Genetics on the WWW
  Provides links to bioethics centers, journals, articles, federal programs, funding opportunities, etc. Also see Health and Education.

  The Genetics Home Reference
  For users who would like more general information about genetics, "Help Me Understand Genetics" provides a basic explanation of how genes work and how mutations cause genetic disorders. It also includes current information about genetic counseling, genetic testing, gene therapy, and the Human Genome Project.

• National Office of Public Health Genomics
  This regularly updated site provides access to current information on the impact of human genetic research and the Human Genome Project on public health and disease prevention. It is also home to the website for HuGE NeT (Human Genome Epidemiology Network) presenting information on epidemiologic aspects of human genes.

• NHGRI
  homepage for the National Human Genome Research Institute at the National Institutes of Health.

  Additional resources related to genetics from the NHGRI include:

  Spanish “Talking Glossary of Genetics”
  This is a very helpful glossary using an innovative combination of text, illustrations and audio commentary in an accessible, user-friendly format. It is available free on NHGRI’s Web site.

• OMIM
  Online Mendelian Inheritance in Man. This database is a catalog of human genes and genetic disorders.

• Washington State Genetics Documents
  includes genetics curriculum for health care professionals and a training manual on Fetal Alcohol Syndrome

Genetic Organizations & Support Groups

• Alliance of Genetic Support Groups
  includes a listing of most genetic support groups.

• The British Society for Human Genetics

• FASEB
  Links to other genetics societies.

• FORCE: Facing Our Risk of Cancer Empowered
  A nonprofit forum and resource site for women who are at high risk of hereditary breast and ovarian cancer.

• Ibero-American Society of Human Genetics (IASHG)
  A professional society focused on promoting professional and scientific studies related to the human genetics of the Latino populations in the United States and work for the improvement of their level of genetic health care.

• National Organization for Rare Disorders
  federation of health organizations for rare disorders including many genetic conditions.

• NSGC
  National Society of Genetic Counselors' homepage.

Nursing Sites

• AACN
  Site for the American Association of Colleges of Nursing

• Lippincott's Nursing Center
  an enhanced and expanded version of AJN ONLINE. The Center is committed to providing practicing nurses, researchers, and educators with direct access to powerful educational opportunities and information.

• NursingNet
  our mission is to help further the knowledge and understanding of Nursing for the public, and to provide a forum for medical professionals and students to obtain and disseminate information about nursing and medically related subjects.

• Nursing World
  Site for the American Nurses' Association.

• ONS Online
  site for the Oncology Nursing Society.

• Sigma Theta Tau
  offers a variety of information about the society's programs.

• The "Virtual" - Nursing Center
  Medical Dictionaries & Glossaries, Metabolic Pathways & Genetic Maps, Interactive Anatomy Browsers, On-Line Nursing Journals, etc.

Medical Sites with Relevant Content

• Ethnomed
  Includes content about cultural and social factors affecting health in selected ethnic groups.

• Pedbase
  A pediatric database of pediatric diseases and syndromes including many genetic disorders.

• PubMed
  This WWW retrieval service developed by NLM provides free access to MEDLINE.

Last edited: 11/10/03

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