 |
|
 |
     |
  |
International Society of Nurses in GeneticsThere is a new national policy effort being coordinated by the Genome Center to push for legislation to protect individuals from genetic discrimination. To proceed with these efforts, they are requesting information about individuals or families denied employment or health insurance opportunities based on genetic predisposition information. In addition, they are seeking information about individuals whose fears of such discrimination have affected major life decisions, such as participation in research studies, or sharing information with other family members or health care providers, or other potential major decisions. Kathy Hudson, PhD, the Assistant Director for Policy Coordination at NHGRI is coordinating this effort, and can be contacted directly by patients, or by you detailing the discrimination, or fear of discrimination's impact. Her e-mail is kh93v@nih.gov This is an important opportunity for us all to get involved in this national effort, and think about who may be able to present a compelling case.Kathy Hudson would like to personally speak to the individual who has experienced discrimination, and ask them to possibly appear at a national gathering to discuss it. Kathy will be able to provide the individual with more specific information when she speaks with them. Even if appearing in public is not a welcome opportunity, assembling the stories is extremely important right now.
Copyright © 2010, ISONG |