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Genetics and Ethics in Health
Care: New Questions in the Age
of Genomic Health
By Rita Black Monsen, DSN, MPH, RN, FAAN, Editor -- Brochure and Order Form (PDF) |
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Genetics/Genomics Competency Center -- open source repository of curricular materials.
Visit www.g-2-c-2.org |
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National Genetics Education and Development Centre -- a site for learners and educators about what is important to know and the activities to be undertaken in clinical practice. Includes factsheets, videos, powerpoint presentations, telling stories and case scenarios.
Visit www.geneticseducation |
Biochemgen -
a searchable list of biochemical genetic tests and the laboratories that offer each.
Visit http://biochemgen.ucsd.edu/
GeneTests - a genetic testing resource which provides listings of clinical and/or research laboratories performing testing for heritable disorders.
Visit www.genetests.org/
HUM-MOLGEN -
is a moderated, interactive communication and information list serv in human genetics. Anybody interested in human genetics and molecular biology can subscribe to the mailing list, called HUM-MOLGEN and communicate directly with all other members at the same time. HUM-MOLGEN has 10 different topics. They are: NEWS in Human Genetics, CALLs for collaboration, ANNOuncements, LITErature, REVIews, ETHIcal and social issues, DIAGnostics, COMPutational Genetics, SPECial topics in Genetics, BIOTechnology. Subscribers can choose the topics from which to receive messages.
Visit www.hum-molgen.de/
The Human Genome Program of the Department of Energy -
includes Primer on Molecular Genetics and To Know Ourselves.
Visit www.jgi.doe.gov/index.html
Human Genome Project Information -
site for material about the history, progress, research, and resources of the Human Genome Project and maintained by the Human Genome Management Information System (HGMIS) for the U.S. Department of Energy Human Genome Program.
Visit www.ornl.gov/TechResources/Human_Genome/home.html
Information for Genetic Professionals -
at the University of Kansas Medical Center is updated regularly for genetic counselors, clinical geneticists, and medical geneticists with links to a variety of clinical, research and educational resources.
Visit www.kumc.edu/gec/geneinfo.html
The Genetic Counseling Cultural Competence Toolkit is an online resource portal for genetics service providers interested in enhancing their ability to provide culturally and linguistically appropriate health care services. The website, developed with a JEMF (Jane Engelberg Memorial Fellowship) grant of the National Society of Genetic Counselors, features a network of links and resources on cross cultural communication and multilingual resources, health disparities and national standards, health literacy, clinical tools, teaching tools, etc. The website also includes 9 extensive cases that have been approved for Category 1 CEUs for genetic counselors and as an interdisciplinary continuing education opportunity for nurses. Continuing education credits are also available for medical interpreters and translators; students and other interested adult learners can earn a learning certificate for completing the case series.
Visit http://www.geneticcounselingtoolkit.com
